RESOURCES

About Dystonia/Focal Dystonia/Task-Specific Focal Dystonia/Musicians Dystonia/Focal Task-Specific Embouchure Dystonia
https://www.sciencedirect.com/topics/medicine-and-dentistry/musicians-dystonia
https://clinicalmovementdisorders.biomedcentral.com/articles/10.1186/s40734-016-0035-x#:~:text=Embouchure%20dystonia%20(ED)%20is%20a,a%20brass%20or%20woodwind%20instrument.
http://www.dystonia.ie/forms-of-dystonia/focal-forms/musicians-dystonia/embouchure/
https://ghr.nlm.nih.gov/condition/task-specific-focal-dystonia
https://dystonia-foundation.org/what-is-dystonia/types-dystonia/musicians/
https://n.neurology.org/content/84/14_Supplement/P3.005
(Classifications of Dystonia) https://rarediseases.org/rare-diseases/dystonia/

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Medical Referral Links

• Neurologists

  • (Xcel doc) Neurologists, Researchers, and Medical Professionals Involved with ​Musicians Dystonia

  • Well known neurologists for diagnosing Musicians Dystonia: Dr. Eckart Altenmüller, Dr. Steven J. Frucht, Dr. Stephan U. Schuele, Dr. Mark Hallett, Dr. Richad J. Lederman, Dr. Joel S. Perlmutter.

• Surgeons well known for working with musicians (not dystonia-related, but for muscle tear/micro tear injuries and overuse)​

  • Surgery, Physical Therapy, and Retraining for Injured Embouchures: Dr. Vander Kolk, Dr. Shulman, and David Fedderly​

  • Dr. Simon McGrail (Toronto) - has retired unfortunately. Unsure if available for consultation.

• Foundation and Association Directories​

  • ​Dystonia Medical Research Foundation Directory of Physicians, Neurologists, and Healthcare Professionals

  • Dystonia Medical Research Foundation Contact Information

  • Performing Arts Medicine Association Physician and Medical Directory

• Clinics and Institutes that evaluate and diagnose Musician's Focal Dystonia

  • ​Northwestern School of Medicine (Chicago, IL)

  • Washington University School of Medicine (St. Louis, MO)

  • Cleveland Clinic (Cleveland, OH)

  • NYU Langone Health (New York, NY)

  • Mayo Clinic​ (MN, FL, AZ)

  • Johns Hopkins Center for Music & Medicine (Peabody Institute - Baltimore, MD)

  • Yale Medicine (New Haven, CT)

  • Columbia University Irving Medical Center - Department of Neurology (New York)

  • Mount Saini School of Medicine - Neurology (Manhattan, NY)

  • Pacific Movement Disorders Center (Santa Monica, CA)

  • Cedar-Sinai Neurology (Los Angeles, CA)

  • Barrow Neuological Institute (Phoenix, AZ)

  • Henry Ford's Movement Disorder Center (Detroit, MI)

  • Cayuga Medical Center (NY)

  • UCLA Health - Neurology (CA)

  • University of Rochester Medical Center (Rochester, NY)

  • Rutgers University - RWJB Neurology (New Jersey)

  • UT Southwestern Medical Center (Texas)

  • University of Vermont Medical Center (Burlington, VT)

  • Massachusetts General Hospital Neurology (Boston, MA)

  • University of Wisconsin Health (Madison, WI)

• Tax Credits, Health Insurance, Life Insurance, Disability, IRA, Relief Funding, etc.

  • Financial Planning Guide for Musicians and Performing Artists

  • Relief Funding and Financial Aid in Crisis

  • Grants and Resources during COVID

• Musician Health & Medical Organizations and Foundations​